North East Lincolnshire Down's Syndrome Family Support Group

Supporting children and adults with Down's syndrome and their families in North East Lincolnshire. Charity number 1154260


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2016 Christmas Fair

Posted on November 9, 2016 at 7:00 PM Comments comments (0)

Sam and Andrew's Big Step Forward

Posted on June 13, 2013 at 7:20 PM

The Big Step Forward Update - Here's Sam & Andrew at the end of their epic 135mile walk across the Glyndwr Way on Saturday to raise funds for our group. They did amazingly over some rough terrain and covered 23,000ft of ascent in ten days!! The weather was kind to them with only one wet day, which helped enormously. We are in process of gathering all the sponsor money and will give you and update of how much they raised for us when all the monies are in.


NAViGO fundraising effort for our group

Posted on May 17, 2013 at 12:50 PM

Sophie Wilson and Co-Chairs Sarah Dix and Clare Jervis receiving £250 from Jack Brumpton on behalf of our group. Jack, along with his Mum Julia, and Julia's work colleagues at NAViGO, who provide the mental health services to NE Lincs, had a fundraising cake and bric a brac charity stall at Diana Princess of Wales Hospital. Many thanks to Jack, Julia and Julia's colleagues at NAViGO for your support.

Grimsby Telegraph article on our group

Posted on March 13, 2013 at 5:40 AM

The Grimsby Telegraph have an article about our group in the 13th March 2013 edition.  Click here to read.

Independent Parental Special Education Advice

Posted on February 7, 2013 at 12:50 PM

IPSEA is a registered charity offering free and independent advice to parents of children with special educational needs in England and Wales.

IPSEA has issued a Press Release about the new Children & Families Bill as follows:

"At 5pm on Monday 4th February, the Children & Families Bill was presented in Parliament. The Bill was published today. Section 3 of this Bill is based on the draft SEN provisions that IPSEA analysed in October 2012.

Our Press Release has some initial observations. Edward Timpson, the Minister responsible for SEN, has written a letter explaining some of the changes made to the draft provisions.

IPSEA will produce a thorough analysis of the Bill in due course. We will let you know once this is completed."

See the IPSEA website for more details.

Symbol Speech and Language Therapy Service

Posted on January 16, 2013 at 3:30 PM

Symbol UK provides specialist speech and language therapy services, consultation and training focusing on children and adults with special needs, communication difficulties and/or eating and drinking needs.

Good practice guidelines: education for children and young people with Down's syndrome

Posted on January 10, 2013 at 12:15 PM

The UK All Party Parliamentary Group on Down Syndrome has published a report presenting good practice guidelines for education for children and young people with Down syndrome.


The new report, published by the UK All Party Parliamentary Group on Down Syndrome, offers guidelines on education for children and young people with Down syndrome aged from birth to 25 years.


The All Party Parliamentary Group on Down Syndrome (APPGDS) aims to to raise awareness of issues affecting people with Down syndrome, and the prospects for improving life outcomes, and to campaign for changes to government policy to improve the lives of people with Down Syndrome. The APPGDS steering group includes family members and representatives of IPSEA, the Down's Heart Group and Down Syndrome Education International.


The report was prepared by an Education Working Group, assembled by the APPGDS, including psychologists, speech and language therapists, teachers and representatives of the Down's Syndrome Association, Symbol UK, NASEN, IPSEA, The Education Centre for Children with Down Syndrome and Down Syndrome Education International.


The report calls on government to:


1. Recognise the specific developmental and educational needs of children and young people with Down syndrome as a unique group

2. Ensure effective planning and monitoring for this population of children/ young people

3. Develop the inspection framework so that the inspection process is informed by and checks against identified good practice with pupils with SEN, and specifically Down syndrome

4. Promote and support syndrome-specific approaches tailored to the learning profile of children and young people with Down syndrome, and endorse the principles set out in this document

5. Develop government led, centrally produced, evidence based guidance for practitioners on Down syndrome

6. Protect the provision of specialist Down syndrome support services

7. Recognise and meet the need for provision of additional resourcing


The report summarises information about the specific learning needs of children with Down syndrome and sets out principles for effective education practice.


The report is attached and is available to download:

Christmas Fair

Posted on November 24, 2012 at 1:30 PM

Thank you to everyone involved in making our first Christmas Fair such a big success! The children and parents did us proud by singing and signing in front of such a large audience and the turn out was wonderful. The help and support from friends and family was fantastic - thank you so much. We will let you know the total raised very soon. To see more pictures visit the photo gallery or click on this link:

Pelham Singers Donation

Posted on September 11, 2012 at 4:25 PM

The Pelham Singers, of Immingham have kindly donated £300 to our group. Sarah Dix received the cheque on behalf of the group - thank you!

Sponsored Walk - July 2012

Posted on September 6, 2012 at 1:05 PM

Well done and a huge thank you to everyone involved with the Communication Group sponsored walk held in July. Group member Donna Elliot organised the event to raise funds to buy iPads and specialist Apps for children attending the Communication Group sessions . The total raised so far is £2820.50! Thank you and well done Donna!

A full report by Debbie Whiting and more photos are on the Communication Group page and in the Photo Gallery.